My whole goal of starting this blog was to document this whole experience, hoping to help others. The irony is that for most of the time, people with chronic Lyme are too sick to maintain a blog. The majority of the last several months, I have been either too weak to hold my head up, or even to sit up-right. Or maybe my joints & bones hurt so much that it's just too painful to type. Then there's the times where I struggle to form sentences, even thoughts. I laugh now, remembering all the times when it took me a few hours to post a status on Facebook. Wow. But that's what it's like. And, there's millions of other "Lymies" out there going through the same thing!
In an effort to remain truthful, real, I will try to be as candid as possible. There is an extreme amount of shame that envelops one's experience with Lyme. The bizarre, complex, ubiquitous collection of symptoms (and may I add, quite extensive) would make anyone feel crazy, if not damaged and worthless, to say the very least... I have found comfort in not only finding caring, compassionate doctors (Lyme-Literate, of course), but by reading or hearing about story after story, experience after experience of others just like me. There's more of us out there than I could ever have imagined! The similarities in our stories is impossible to ignore, yet we each have our own individual chapters, only just slightly unique to us and only us.
I'm forever grateful to have found so many websites full of remarkable information. I feel much more prepared to fight whatever I need to fight when I'm as knowledgeable as I can get. Also, I'm so very grateful to have found online support groups/networking sites. When you are affected by a chronic illness, or are a caregiver or practitioner, it is of utmost importance to surround yourself with kind, compassionate people who you can trust and relate to. Humans are social beings (as well as spiritual beings..) and we need each other! Whatever it is that brings us together, who cares? All that matters I think is that when like-minded people come together, anything is possible!
I was kind of intending this blog to serve as an online diary, of sorts. It's therapy. Even if not a single person reads my blog entries, I won't be disappointed or offended. Who has time anyway? I just hope from this point on in my rehabilitation, I will feel well enough to consistently follow through with these blog entries. Maybe I'll binge, by typing on & on one week (or day even), then purge. Meaning no one hears from me for days or weeks. To the uninformed, when I disappear like that, that means I'm probably not feeling too well. Anyway, I'll try to just do my best. For me. If I could help just one person out there, that is my goal. I just hope my experience in this matter could help prevent someone else's future suffering. That is all.
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